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The National Academies of Sciences, Engineering and Medicine
Forum on Promoting Children's Cognitive Affective and Behavioral Health
Forum on Promoting Children's Cognitive Affective and Behavioral Health
Division of Behavioral and Social Sciences and Education
WORKSHOP ON ENSURING QUALITY AND ACCESSIBLE CARE FOR CHILDREN WITH DISABILITIES AND COMPLEX HEALTH AND EDUCATIONAL NEEDS
December 9-10, 2015
Washington, DC
Day 1 – Wednesday, December 9, 2015

Introductory Session, “Perspectives from Individuals & Family Members”

Moderator: Stephen M. Shore, Adelphi University
J-Jaye Hurley, Parent Advocate and Autism Response Team Coordinator - Autism Speaks: Presentation
Jill Plevinsky, Founding Chair, Patient Advisory Council, ImproveCareNow: Presentation
Victoria Costello, Parent Advocate, Science Journalist, and Public Library of Science (PLOS): Presentation

Keynote Presentation, “Disability Names and Numbers: Challenges and Opportunities in Nosology, Epidemiology, and Equity/Disparity”

Moderator: Deborah Klein Walker, Abt Associates & American Orthopsychiatric Association
Maureen S. Durkin, University of Wisconsin-Madison: Presentation

Panel One, “Children with Serious Medical Conditions and the Behavioral Health Implications”

Moderator: Mary Ann McCabe, George Washington University School of Medicine, George Mason University
Anne E. Kazak, Nemours Children’s Health System and Sidney Kimmel Medical School of Thomas Jefferson University: Presentaion
Robin S. Everhart, Virginia Commonwealth University: Presentation
Amy J. Houtrow, Children's Hospital of Pittsburgh of UPMC: Presentation
Torrie Dunlap, Kids Included Together: Presentation

Panel Two, “Early Identification and Interventions for Developmental Disabilities Emerging in Childhood”

Moderator: Craig J. Newschaffer., Drexel University
Heather Johnson, Uniformed Services University of the Health Sciences Graduate School of Nursing: Presentation
Nathan A. Call, Marcus Autism Center, Emory University School of Medicine: Presentation
Connie Kasari, University of California, Los Angeles: Presentation
David S. Mandell, University of Pennsylvania School of Medicine: Presentation

Panel Three, “Early Identification and Interventions for Youth and Adolescents with Serious Behavioral Health Conditions”
Moderator: Kirsten Beronio, J.D., Office of the Assistant Secretary for Planning and Evaluation
Mary Fristad, Ohio State University Medical Center: Presentation
Robert K. Heinssen, National Institute of Mental Health: Presentation
Lisa Dixon, Columbia University Medical Center & New York State Psychiatric Institute: Presentation
Shay Bilchik, Georgetown University Center for Juvenile Justice Reform: Presentation

Armchair Discussion/Reflections from Moderators (full group Q&A)
Moderator: Maureen S. Durkin, University of Wisconsin-Madison


Day 2 – Thursday, December 10, 2015

Panel Four, “Media & Public Perceptions/Misperceptions of Children with Disabilities”
Moderator: Andy Shih, Autism Speaks & Donald Wertlieb, American Orthopsychiatric Association and Tufts University
•Steve Silberman, Science Writer and Author of NeuroTribes: The Legacy of Autism and the Future of Neurodiversity
•Susan M. Lanzoni, Historian of Science and Writer, Harvard University
Victoria Costello, Parent Advocate, Science Journalist, and Public Library of Science (PLOS): Presentation
Tony Foleno, The Advertising Council: Presentation
•Emily J. Willingham, Freelance Writer

Interactive Breakout Group Sessions and Report Back
•Group 1: Considerations for when an evidence base is lacking
Moderator: C. Hendricks Brown, Northwestern University & Emily Lichvar, Center for Mental health Services, Substance Abuse and Mental Health Services Administration, U.S. Department of Health and Human Services
•Group 2: Community engagement and partnerships for development and implementation of solutions
Moderator: Kelly J. Kelleher, The Research Institute at Nationwide Children’s Hospital & Angela Lello, Autism Speaks
•Group 3: This breakout group is offered to participants of both the December 7-8 “National Symposium on Designing Systems That Work for Children with Complex Health Care Needs” and the December 9-10 “Workshop on Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs”
Moderators: Andy Shih, Autism Speaks & Ed Schor, Lucile Packard Foundation for Children’s Health

 


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