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The National Academies of Sciences, Engineering and Medicine
Forum on Promoting Children's Cognitive Affective and Behavioral Health
Forum on Promoting Children's Cognitive Affective and Behavioral Health
Division of Behavioral and Social Sciences and Education
Workshop on Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs 

December 9-10, 2015

The National Academies Keck Center
500 Fifth Street, NW, Room 100
Washington, DC 20001


WORKSHOP PANELS

Day 1 Welcome Panel 2 Panel 4
Introductory Session Panel 3 Breakout Group Reports
Keynote Armchair Discussion  
Panel 1 Day 2 Welcome  




Welcome & Workshop Overview  
   

Introductory Session, “Perspectives from Individuals & Family Members”
Moderator: Stephen M. Shore, EdD, Adelphi University

Introduction
 

J-Jaye Hurley
Autism Speaks

Jill Plevinsky, MA
ImproveCareNow

Victoria Costello, MFA

Public Library of Science

Discussion
     

Keynote Presentation, “Disability Names and Numbers: Challenges and Opportunities in Nosology, Epidemiology, and Equity/Disparity”
Maureen S. Durkin, PhD, DrPH, MPH, University of Wisconsin-Madison
(Moderator: Deborah Klein Walker, EdD, Abt Associates)

 

Keynote Presentation

Discussion

   

Panel One, “Children with Serious Medical Conditions and the Behavioral Health Implications”
Moderator: Mary Ann McCabe, PhD, ABPP, George Washington University School of Medicine, George Mason University

Introduction


 

Anne E. Kazak, PhD, ABPP
Nemours Children’s Health System
& Sidney Kimmel Medical School
of Thomas Jefferson University

Robin S. Everhart, PhD
Virginia Commonwealth University

 

Amy J. Houtrow, MD, PhD, MPH
Children's Hospital of Pittsburgh of UPMC

 

Torrie Dunlap, CPLP
Kids Included Together

Discussion
 

   
Panel Two, “Early Identification and Interventions for Developmental Disabilities Emerging in Childhood”
Moderator: Craig J. Newschaffer, PhD, Drexel University

 Introduction


 


Heather Johnson, DNP, FNP-BC,
FAANP
Uniformed Services University of
the Health Sciences
Graduate School of Nursing

Nathan A. Call, PhD, BCBA-D
Emory University School of Medicine

 
Connie Kasari, PhD
University of California, Los Angeles


 

David S. Mandell, ScD
University of Pennsylvania School of Medicine

Discussion
   
Panel Three, “Early Identification and Interventions for Youth and Adolescents with Serious
Behavioral Health Conditions”
Moderator: Kirsten Beronio, JD, Office of the Assistant Secretary for Planning and Evaluation

Introduction

 

Mary Fristad, PhD, ABPP
Ohio State University Medical Center
 

Robert K. Heinssen, PhD, ABPP
National Institute of Mental Health
  

Lisa Dixon, MD, MPH
Columbia University Medical Center
New York State Psychiatric Institute

Shay Bilchik, JD
Georgetown University Center for
Juvenile Justice Reform

Discussion

 
   

Armchair Discussion/Reflections from Moderators (full group Q&A)
Moderator: Maureen S. Durkin, PhD, DrPH, MPH, University of Wisconsin-Madison
  Armchair
     

Welcome, Brief Recap of Day One, & Overview for Day Two  
 

Panel Four, “Media & Public Perceptions/Misperceptions of Children with Disabilities”

Moderators: Andy Shih, PhD, Autism Speaks & Donald Wertlieb, PhD, American Orthopsychiatric Association and Tufts University
Introduction Steve Silberman
Science Writer
Susan M. Lanzoni, PhD
Harvard University
Victoria Costello, MFA
Public Library of Science
Tony Foleno, MA
The Advertising Council
Emily J. Willingham, PhD
Freelance Writer
Discussion  
Interactive Breakout Group Sessions- Report Back
• Group 1: Considerations for when an evidence base is lacking
Moderator: C. Hendricks Brown, PhD, Northwestern University & Emily Lichvar, PhD, Center for Mental Health Services, Substance Abuse and Mental Health Services Administration,
U.S. Department of Health and Human Services


Group 2: Community engagement and partnerships for development and implementation of solutions
Moderator: Kelly J. Kelleher, MD, The Research Institute at Nationwide Children’s Hospital & Angela Lello, MPA, Autism Speaks

Group 3: This breakout group is offered to participants of both the December 7-8 “National Symposium on Designing Systems That Work for Children with Complex Health Care Needs” and the December 9-10 “Workshop on Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs”
Moderators: Andy Shih, PhD, Autism Speaks & Ed Schor, MD, Lucile Packard Foundation for Children’s Health
 
     

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