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February 27, 2018
Information Technology and the U.S. Workforce


Workshops
March 14-16, 2018
Data Matters: Ethics, Data, and International Research Collaborations in a Changing World


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The International Research Collaborations Working Group of the Government-University-Industry Research Roundtable of the U.S. National Academies of Sciences, Engineering, and Medicine will host a workshop on “Data Matters: Ethics, Data, and International Research Collaboration in a Changing World,” on March 14-16, 2018, at the National Academy of Sciences Building in Washington, DC.

The workshop will explore the changing opportunities and risks of data management and use across disciplinary domains to examine advisory principles for consideration when developing international research agreements. The goal is to highlight promising practices for sustaining and enabling international research collaborations at the highest ethical level possible. Diverse perspectives with respect to sector, region, and discipline will be represented throughout the workshop to increase the likelihood of identifying common challenges. Workshop attendance is by invitation. 

This workshop will be the third in a series examining relevant aspects of design and execution of international research collaborations. It will build on previous activities that have defined general features of successful international collaborations, starting with a workshop held in 2010 (Examining Core Elements of International Research Collaboration) and a follow-on event in 2013 centered on the role of culture (Culture Matters: International Research Collaboration in a Changing World). 
MEETING REGISTRATION


Wednesday, March 14, 2018
Day 1: Data  Matters
 
3:30-5:30 Introduction and Framing the Issues
  

International research agreements can serve many purposes, but data is essentially always involved in these collaborations. The kinds of data in play within international research agreements may range from financial and consumer data, earth and space data, population behavior and health data, as well as specific project-generated data. The uses of the data are various and require accounting for the impact of data access, use, and sharing on many different parties. Cultural, legal, policy, and technical concerns are also important determinants of what can be done in the realms of maintaining privacy, confidentiality and security. Ethics is a lens through which the issues of data, data sharing, and research agreements can be viewed and will be the focus of this meeting.

This session will introduce the three threads of the meeting (data, ethics, and international research collaboration), describe the nexus among them, and consider the arc of change over time that has gotten us to the current state. 
 

   
5:30-7:30 pm Reception and Keynote
   
   
Thursday, March 15, 2018
Day 2: Privacy, Security, and Confidentiality of Data Sharing and Storage
 

8:00-11:00 am

 

Session 1: The Upside and the Downside: Protections, Incentives, Disincentives, and Risks

  General theoretical issues to consider when developing international research agreements. The goal for this session is to establish a common level of understanding among participants about the landscape of concerns and principles within agreements that pertain to privacy, security, and confidentiality of data sharing and storage. One panel will consider technical issues and another panel will consider socio-technical issues.
   
11:00 am-12:15 pm Session 2: Domain-Specific Examples
  A panel to discuss domain-specific challenges to collaboration. Examples will address the issues discussed in the general session that immediately precede the domain discussions and will allow for a ‘compare and contrast’ across issue-specific domains. The goal is to seed the discussion in the breakout groups which will go deeper into particular challenges and opportunities within different domains. Domains for exploration will consider biomedical, environmental, security, and humanitarian and international development fields. 
   
12:15-2:30 pm Session 3: Breakout Groups - Domain-Specific Examples and Lunch
  Breakout group discussions to explore important considerations when crafting agreements that include data sharing plans in either a domain-specific manner or in a more general/generalizable manner. This will be accomplished by presenting a series of discussion questions and scenarios for the group members to consider and by capturing the range of perspectives shared by participants.  
   
2:30-5:30 pm Session 4: Privacy, Security, Equity, and Confidentiality of Data Sharing and Storage
  Plenary presentation and panel discussion to consider the purpose-specific, population-specific, data type-specific concerns on privacy, security, confidentiality, and resilience with consideration to regional concerns.
   
   
Friday, March 16, 2018
Day 3: Changing Technology and Social Landscape 
 
8:15-9:00 am 

Session 1: New and Emerging Technologies: Internet of People and Things

  A presentation to consider concerns and opportunities for the development of the Internet of Things in the context of privacy, security, and confidentiality challenges. The presentation and following discussion will also explore approaches to sharing best practices internationally and will consider governance issues worldwide.
   
9:00 am-12:15 pm Session 2: Breakout Groups - Changing Technology and Social Landscape
  Small group discussions and report-outs on the possible actions, frameworks, networks, and institutional governance necessary to enable guidance on the handling of data collection and usage with respect to emerging technologies.
   
1:00-2:00 pm Session 3: New and Emerging Technologies: Artificial Intelligence 
  A panel discussion to consider future technological breakthroughs in AI and the socio-political and economic challenges of adoption and governance. How can international research collaborations be structured effectively now and in the future to facilitate technological adoption and governance across boundaries with specific regard to artificial intelligence and machine learning?
   
2:00-2:45 pm Session 4: Changing Technology and Social Landscape
  Plenary concluding presentation on the nexus of data and ethics within international research collaborations.  
   
3:00-3:30 pm Session 5: Next Steps
  Is there further need to establish long-standing working groups on data and ethics for international research collaborations?
   
    
 
       
 
 

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