Improving Health Research on Small Populations: Proceedings of a Workshop
This publication from the Committee on National Statistics summarizes a workshop that took place in January 2018 that considered ways of addressing the challenges of conducting epidemiological studies or intervention research with small population groups, including alternative study designs, innovative methodologies for data collection, and innovative statistical techniques for analysis.
GET THE REPORTAn ad hoc steering committee will organize a one and a half day public workshop sponsored by the National Cancer Institute, National Institutes of Health, to discuss issues of conducting research on small, underrepresented population subgroups in health research. There continue to be communities that are often difficult to include in research studies because of the size, dispersion, and/or accessibility of the subpopulation, and the workshop will consider ways of addressing the challenges of research and interventions with small population groups, including alternative study designs, innovative methodologies, and innovative statistical techniques.
Specifically, the workshop will address approaches for identification, recruitment, and retention strategies for maximizing the sample sizes of small groups in intervention and research studies; epidemiological design and analytics approaches for small samples; and intervention design and analytic approaches for subpopulations. Background papers will be commissioned and distributed in advance of the workshop. A proceedings of the workshop and a brief proceedings of a workshop will be prepared by a rapporteur and reviewed according to institutional policy. Presentation materials will be posted on the Internet.
This project is a collaboration between the Committee on National Statistics in the Division of Behavioral and Social Sciences and Education (DBASSE) and the Health and Medicine Division (HMD) of the National Academies.
The National Cancer Institute (NCI), the National Institute on Minority Health and Disparities (NIMHD), and the Office of Behavioral and Social Sciences Research (OBSSR) of the National Institutes of Health are co-sponsors of this workshop. Support for this workshop was also provided, in part, by the Robert Wood Johnson Foundation. The views expressed here do not necessarily reflect the views of the Foundation.
Thursday, January 18 - Friday, January 19, 2018
AGENDA BOOK Location:
National Academy of Sciences Building
2101 Constitution Avenue NW
Washington, DC 20418Lecture Room PRESENTATIONS
Ellen K. Cromley
, Using Geospatial Methods with Other Health and Environmental Data to Identify Populations Kelly J. Devers
, The Feasibility of Using Electronic Health Records (EHRs) and Other Electronic Health Data for Research on Small PopulationsMarc N. Elliott
, Probability Sampling Methods for Small PopulationsChristopher S. Fowler
, The Geography of Small Populations: Issues in Defining an Appropriate Geographic ContextKrista J. Gile
, Discussion: Techniques to Identify and Find Small PopulationsScarlett Lin Gomez
, Data Issues in Studying Small Populations: Challenges, Opportunities, and a Case StudyRick H. Hoyle
, Design and Analysis Considerations in Research with Small SamplesAmy L. Kilbourne
, Designs for Dissemination and Implementation Research for Small PopulationsDiane M. Korngiebel
, Addressing the Challenges of Research with Small PopulationsSunghee Lee et al
., Two Applications of Respondent Driven Sampling: Ethnic Minorities and Illicit Substance UsersThomas A. Louis
, Bayesian Methods for Small Population AnalysisChristine Lu
, Quasi-experimental Designs with Application to Small Populations
Katherine R. McLaughlin
, Estimating the Size of Hidden Populations
, Using Technology for Recruitment, Retention, Data Collection, and Intervention DeliveryTracy Onega
, Recruitment, Retention, and Collection of Data with a Focus on Small or Hard to Reach Populations F. Douglas Scutchfield
, Improving Health Research in Rural Areas: The Case of KentuckyLisa B. Signorello
, Fielding Studies in Underrepresented Populations: Challenges and Considerations Patrick S. Sullivan
, Venue-based and On-line Sampling
Vetta L. Sanders Thompson
, Issues and Challenges Associated with Recruitment and Retention for Health Research
Graham A. Colditz (Chair), School of Medicine, Washington University, St. Louis
James Allen, Department of Family Medicine and Biobehavioral Health, University of Minnesota Medical School, Duluth Campus
C. Graham Kalton, Westat
Janice C. Probst, Department of Health Services Policy and Management, University of South Carolina
Lance A. Waller, Rollins School of Public Health, Emory University
Nancy Kirkendall, Study Director
Jordyn White, Program Officer
Anthony Mann, Program Associate