| |Project Overview
The National Academies’ Division of Social and Behavioral Sciences and Education will appoint a committee to conduct a decadal survey focusing on developing a research agenda for the next decade in the behavioral and social sciences as it relates to Alzheimer's disease (AD) and Alzheimer's disease-related dementias (ADRD). For this Decadal Survey, drawing on extensive input from the scientific community and other stakeholders, the committee will assess the role of the social and behavioral sciences in reducing the burden of AD/ADRD. The study will identify research opportunities throughout the social and behavioral sciences, including psychology, sociology, demography, economics, and anthropology, cognition, and behavioral neuroscience, that can be brought to bear on prevention, care, and better understanding of the effects of the disease on society.
Various techniques will be used to identify the community of experts outside of the appointed committee including town halls, the use of social media directed towards science (e.g. IdeaBuzz), and webcasting of special workshops to draw attention to the initiative.
Statement of Task
The committee will conduct a decadal survey focusing on developing a research agenda for the next decade in the behavioral and social sciences as it relates to Alzheimer’s disease (AD) and Alzheimer’s disease-related dementias (ADRD). Drawing on extensive input from the scientific community and other stakeholders, the committee will assess the role of the social and behavioral sciences (including data sources and other resources) in reducing the burden of AD/ADRD.
The following areas will be reviewed:
- research using the methods of behavioral and social sciences on the burden of AD/ADRD on
individuals, families, medical and long-term care systems;
- challenges associated with AD/ADRD care;
- intervention development for persons with dementia and their caregivers at different stages
- cognitive and AD/ADRD epidemiology;
- AD/ADRD prevention, leveraging basic and translational research on behavioral and social
pathways to AD/ADRD and cognitive decline;
- detection of AD/ADRD-related change;
- the causes and consequences of AD/ADRD health disparities; and
- AD/ADRD data infrastructure needs.
A final report will include recommendations for an agenda for social and behavioral science research on AD/ADRD during the next decade (2020-2030).
The Decadal Survey is a special method for engaging members of the research and stakeholder communities to identify new ideas and new lines of research with the greatest potential for impact.
CALL #1 FOR WHITE PAPERS
for Year One Public Activities
April 2019: Issue Call for White Papers
August 2019: Workshop 1, Topics TBD
October 2019, Workshop 2, Topics TBD
Molly Checksfield, Study Director
Tina Winters, Associate Program Officer
Liane Kerry, Senior Program Assistant
Alix Beatty, Senior Program Officer
Julie Schuck, Program Officer
Adrienne Stith Butler, Associate Director, BBCSS
National Institute on Aging
John A. Hartford Foundation
U.S. Department of Veterans Affairs
If your organization would like information on sponsoring this project, please email Barbara Wanchisen, BBCSS Director.