| |Project Overview
The National Academies’ Division of Behavioral and Social Sciences and Education will appoint a committee to conduct a decadal survey focusing on developing a research agenda for the next decade in the behavioral and social sciences as it relates to Alzheimer's disease (AD) and Alzheimer's disease-related dementias (ADRD). For this Decadal Survey, drawing on extensive input from the scientific community and other stakeholders, the committee will assess the role of the social and behavioral sciences in reducing the burden of AD/ADRD. The study will identify research opportunities throughout the social and behavioral sciences, including psychology, sociology, demography, economics, and anthropology, cognition, and behavioral neuroscience, that can be brought to bear on prevention, care, and better understanding of the effects of the disease on society.
Various techniques will be used to identify the community of experts outside of the appointed committee including town halls, the use of social media directed towards science (e.g. IdeaBuzz), and webcasting of special workshops to draw attention to the initiative. This project spans 27 months and will be carried out in two phases. The first phase will include two committee meetings, two workshops, commissioned papers, and two town halls. The purpose of these activities is to maximize outreach to ensure the inclusion of a wide range of scientific work. The second phase will include four committee meetings (two additional workshops in conjunction with two of the meetings), two additional town halls, and delivery of a consensus report.
The decadal committee is currently in the process of assembling advisory panels that will highlight the experiences of and provide perspective from individuals living with ADRD and caregivers.
Statement of Task
The committee will conduct a decadal survey focusing on developing a research agenda for the next decade in the behavioral and social sciences as it relates to Alzheimer’s disease (AD) and Alzheimer’s disease-related dementias (ADRD). Drawing on extensive input from the scientific community and other stakeholders, the committee will assess the role of the social and behavioral sciences (including data sources and other resources) in reducing the burden of AD/ADRD.
The following areas will be reviewed:
- research using the methods of behavioral and social sciences on the burden of AD/ADRD on
individuals, families, medical and long-term care systems;
- challenges associated with AD/ADRD care;
- intervention development for persons with dementia and their caregivers at different stages
- cognitive and AD/ADRD epidemiology;
- AD/ADRD prevention, leveraging basic and translational research on behavioral and social
pathways to AD/ADRD and cognitive decline;
- detection of AD/ADRD-related change;
- the causes and consequences of AD/ADRD health disparities; and
- AD/ADRD data infrastructure needs.
A final report will include recommendations for an agenda for social and behavioral science research on AD/ADRD during the next decade (2020-2030).
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for Year One Public Activities
August 14, 2019, Workshop
October 17, 2019, Workshop 2, Topics TBD
Patricia (Tia) Powell, Chair, Montefiore Einstein Center for Bioethics
Karen Cook, Vice Chair, Stanford University
Margarita Alegria, Massachusetts General Hospital and Harvard Medical School
Deborah Blacker, Harvard Medical School and Harvard T.H. Chan School of Public Health
Maria Glymour, University of California, San Francisco
Roee Gutman, Brown University
Mark Hayward, Population Research Center and Population Health Initiative at the University of Texas at Austin
Ruth Katz, LeadingAge
Spero M. Manson, Centers for American Indian and Alaska Native Health in Colorado School of Public Health, University of Colorado, Denver
Terrie E. Moffitt, Duke University and King's College London
Vincent Mor, Brown University and Providence Veterans Administration Medical Center
David Reuben, UCLA Center for Health Sciences
Roland J. Thorpe, Jr., Johns Hopkins Alzheimer's Disease Research Center for Minority Aging and Hopkins Center for Health Disparities Solutions
Rachel Werner, University of Pennsylvania
Kristine Yaffe, University of California, San Francisco
Julie Zissimopoulos, University of Southern California
Committee bios and more project info
Molly Checksfield, Study Director
Tina Winters, Associate Program Officer
Liane Kerry, Senior Program Assistant
Alix Beatty, Senior Program Officer
Julie Schuck, Program Officer
Adrienne Stith Butler, Associate Director, BBCSS